Living with Lafora – Daisy and Bertie: an update

DAISY and BERTIE   -   the story continues


It is now January 2011 and over a year has passed since Daisy was diagnosed with Lafora’s disease.

On the whole, life goes on almost the same for her.  Unfortunately walks have stopped completely for the time being, as the excitement seems to trigger a fit, and I want to avoid as many of those as I can.  We are fortunate that we have a large garden, so when the weather allows, she potters and plays there.

Since last Autumn the jerks and twitches have become more prevalent, but she still plays with her toys and with Bertie.

I have continued with the diet (on this website) although she has become a little heavier.  Not being able to walk her has not helped this problem.

We go to the homeopathic vet who has tried various potions and is very interested in the condition.  I know he is only able to treat the symptoms, but until some wonder drug comes along, that is sufficient.  I do not want Daisy to have to begin taking chemical drugs currently used to treat Lafora’s until or unless it becomes absolutely necessary.

I am positive that her sight, hearing and memory are all as good as ever.  I do little tests with her to see if she can recall where she last put a particular toy, and Daisy always gets it right.  Her little legs wobble a bit sometimes, but all the symptoms, bar the fits, appear to be worse as the day progresses.

On a sadder note, Daisy’s son, Bertie who has lived with us since birth, was tested last summer to see if he was affected/unaffected.  The test came back positive, which has been a bitter pill for my husband and I to swallow.  It is likely he will develop symptoms in a couple of year’s time when he is about 8.

Whilst I have become more accustomed to seeing Daisy coping with the disease, I cannot say it has become any easier.  However, I do find it encouraging that so much work appears to be going on behind the scenes in an attempt to find out more about Lafora’s and hopefully eventually, to eliminate it from the breed.

Also, all of us who have a Lafora dog must keep hoping that some new treatments might become available to help these adorable little dogs to live a happier life.

Patricia Debley

January 2011

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