We at Laforadogs are keen to support any research into Lafora that we can. We’ve already published the results of our 2012 survey, which can be seen here.

In January 2013 a new survey was made available to gather data to support a clinical study on the diagnosis and progression of the disease over time. To take part, you must:

  1. live in the UK
  2. have a diagnosed affected dog via the WHDC Lafora testing scheme OR
  3. have a diagnosed affected dog via another proven reliable DNA test. If you are unsure about this, please email me on laforadogs@btintnernet.
  4. be prepared to complete further surveys at intervals in the future during the life of your dog.

to find out more, please go to our current  SURVEY page and encourage others with known Lafora affected dogs that meet the profile above to do so too.

Results so far are already providing an extremely useful source of information, but the more participants we have, prepared to provide information over a number of years, the more help the survey will be in raising awareness of this condition in vets, breeders and owners.

2 Responses to “Surveys”

  1. allison lee says:

    I have a 9 -10 year old siberian husky. He has not been tested for Lafora but I just came across this website and his symptoms match perfectly. I had taken him in to the vet and described his symptoms but they said they would need a video to see the behavior in order to know what to test for. In the 1 1/2 years he has had the symptoms, it has progressed from head and body jerks with facial twitching (reminder of a Parkinson’s patient) to collapsing to the floor, usually when eating out of a raised bowl. That is when I realized the sound of the bowl clinking with the wrought iron bowl holder was causing him to jerk and sometimes, collapse on all fours, to the floor. I started feeding him on the carpet, while sitting down, and there is no risk for falling or jerking. I had been using this bowl holder for many years and he never had this problem until 1 1/2 years ago. I am concerned as to where this will lead. My other husky, nearing 12 years old, has no such symptoms.

  2. hi Alison, I’m so sorry to hear your husky is experiencing similar problems. Lafora can occur in any breed, although there are also a number of other conditions that look very similar. I suggest that you take information about Lafora along to your vet but insist on a referral to a veterinary neurologist who can run other tests as well. Good luck in your search.

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