We at Laforadogs are keen to support any research into Lafora that we can. We’ve already published the results of our 2012 survey, which can be seen here.
In January 2013 a new survey was made available to gather data to support a clinical study on the diagnosis and progression of the disease over time. To take part, you must:
- live in the UK
- have a diagnosed affected dog via the WHDC Lafora testing scheme OR
- have a diagnosed affected dog via another proven reliable DNA test. If you are unsure about this, please email me on laforadogs@btintnernet.
- be prepared to complete further surveys at intervals in the future during the life of your dog.
to find out more, please go to our current SURVEY page and encourage others with known Lafora affected dogs that meet the profile above to do so too.
Results so far are already providing an extremely useful source of information, but the more participants we have, prepared to provide information over a number of years, the more help the survey will be in raising awareness of this condition in vets, breeders and owners.